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Frontotemporal Dementia: Symptoms, Diagnosis & Treatment

There are three forms of FTD: Behavioural variant frontotemporal dementia which affects personality and behaviour, primary progressive aphasia which affects speech at first and then behaviour, and progressive non-fluent aphasia which causes people to lose their ability to recall and speak words.

There are three forms of FTD: Behavioural variant frontotemporal dementia which affects personality and behaviour, primary progressive aphasia which affects speech at first and then behaviour, and progressive non-fluent aphasia which causes people to lose their ability to recall and speak words.

There are three forms of FTD: Behavioural variant frontotemporal dementia which affects personality and behaviour, primary progressive aphasia which affects speech at first and then behaviour, and progressive non-fluent aphasia which causes people to lose their ability to recall and speak words.

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Frontotemporal Dementia

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Frontotemporal dementia (FTD) is the name given to dementia when it is due to progressive damage to the frontal and/or temporal lobes of the brain.

The right and left frontal lobes at the front of the brain affect mood, social behaviour, attention, judgement, planning and self-control. Damage can lead to reduced cognitive abilities and changes in personality, emotions and behaviour.

The right and left temporal lobes at the two sides of the brain process hearing and sight. Damage may lead to difficulty recognising objects, understanding or expressing language.

Same Day Diagnosis

At Dementech Neurosciences, we endeavour to see you on the same day, if possible. You no longer have to wait to be seen by a specialist.  With your consent, our private neurologists can also share the full consultation report with your GP.

Same Day Tests, Assessments & Scans

The consultation will begin with an assessment, followed by a diagnosis. Once you have received your diagnosis, you will be given a management plan and will be prescribed with medication. You will also receive a full consultation report.

15-minute Consultation with Patient Advisor

Schedule a free 15-minute initial consultation with a Patient Advisory. This is an opportunity to discuss your condition where the Patient Advisor will suggest the most appropriate route to suits your specific needs.

Video Consultations Available

Dementech Neurosciences is now offering tele consultations to patients who are unable to physically attend our clinic on Wimpole street.

We will be conducting these calls through Skype, FaceTime and WhatsApp call/Video call.

Prices start from £250

You can book a half an hour Skype consultation with a doctor for £250.

 

Full hour consultations with a doctor starts from £450.

Frontotemporal Dementia Symptoms

The main symptoms of frontotemporal dementia (FTD) are a progressive change in personality and behaviour or progressive deterioration in language abilities.

There are three forms of FTD: Behavioural variant frontotemporal dementia which affects personality and behaviour, primary progressive aphasia which affects speech at first and then behaviour, and progressive non-fluent aphasia which causes people to lose their ability to recall and speak words.

As the disease progresses, it becomes increasingly difficult for people to plan or organize activities, behave appropriately in social or work settings, interact with others, and care for themselves, resulting in increasing dependency on caregivers.

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Frontotemporal Dementia Diagnosis

At Dementech Neurosciences’ frontotemporal dementia clinic, following an in-depth consultation with one of our dementia specialists, we can arrange for clinical tests and assessments in order to confirm a diagnosis and assess the extent to which the dementia has developed.

This information can help us determine the appropriate next steps and treatment plans too.

One of the tests available at our London frontotemporal dementia clinic includes assessing in vivo tau protein aggregates using a special type of brain scan called positron emission tomography (PET), which can be used to measure chemical changes within the brain and consequently study the functions of the brain.

This novel imaging tool will enable early diagnosis of FTD before extensive cell loss and symptoms become evident. Additionally, Tau PET can also serve as an indicator of treatment efficacy for interventions aimed at preventing tau aggregate formation.

We also provide genetic screening and counselling for the known genes associated to the familial forms of FTD. Some people with FTD have a family history of dementia and the condition may be inherited in some of these families.

Directly inherited forms of FTD are thought to account for around 10-20% of all cases of the condition. Genes that are known to cause FTD include MAPT gene (tau), progranulin (or GRN) gene or a gene called C9ORF72.

Mutations in the tau gene can cause the tau protein to behave abnormally, forming toxic clumps that can damage brain cells.

We still need to understand more about how mutations in progranulin and C9ORF72 cause the disease. The C9ORF72 gene can cause individuals to develop motor neurone disease or FTD or both conditions and may affect members of the same family differently.

Choosing a Private Neurologist

One of the main advantages of seeing a neurologist privately is that you see a neurologist every time you attend our clinic. The waiting times for new referrals are shorter. You can also to contact our clinic directly if you have concerns about changes in your condition.

Choosing a private neurologist also typically means you will have expenses for consultations, tests such as blood tests and MRI’s. You can give us a call and speak to our friendly clinicians and ask about our fee structure.

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Hear From Our Happy Patients

Have had nothing but kindness and professionalism from Dementech and all their staff. From their initial guidance by Shakeela, through to staff conducting the MRI tests and Dr. Lucio D'Anna for his expertise clarity of explanation, compassion and consideration. Special mention to Zobia, who saved the day with her quick thinking that helped my mother-in-law to obtain extended care. Overall a perfect experience. Cannot recommend them enough.N Mohamed
My family and I experienced one of the hardest times of our lives having to deal with my wife’s deteriorating condition. I would like to personally thank the lovely young lady Zobiaa from Dementech, for showering us with compassion, empathy and genuine care and concern. Her professionalism, high-level customer service and communication, eye for detail, and willingness to go the extra mile to accommodate our needs and make not only my wife, but our whole family, feel as comfortable and supported as possible, is something we will always be grateful for. Thank you so much for your friendly and polite presence Zobiaa and taking the time and effort to build a relationship with us. You really made our visits to the clinic a positive, 5 star experience.P Allen

The Initial Diagnostic package for Dementia consists of the following:

1. Consultation

Initial consultation with a specialist physician.

2. Assessment

Appointment with a neuropsychologist in the Neuropsychiatric Laboratory for computerized, detailed assessments of cognitive deficits and other neuropsychiatric issues associated with dementia.

3. Testing

Blood tests and imaging scans, outsourced to the highest quality and convenient centres in London.

4. Follow-up

When all results are available, a 2nd consultation with the doctor, where clinical diagnosis & follow-up strategy are discussed and explained.

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Frontotemporal Dementia Treatment

Dementia can affect people in multiple and extensive ways, and we understand that addressing all aspects of the disease is important – in order to best look after the wellbeing of the individual affected, as well as their family and caregiver(s).

At Dementech Neurosciences’ frontotemporal dementia clinic, we offer a multidisciplinary approach to treat the whole range of symptoms of FTD.

Our specialist dementia team includes an in-house speech and language therapist, occupational therapist, dietitian, psychologist and psychiatrist to manage effectively cognitive symptoms.

Personalised treatment plans are always our goal, and we will be happy to answer any questions you may have to ensure everything is clear.

Clinical Trials

We also offer the opportunity to participate in clinical trials testing novel pharmacological intervention, before they become available to the public, aiming to delay the progression of the disease.

Caring for a loved one with dementia can also be very stressful and challenging, and it’s very important that support and self-care extends to the caregiver as well.

Our frontotemporal dementia clinic team is always happy to offer guidance and advice to carers, and we are pleased to also offer caregiver support.

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Frequently Asked Questions

I'M CLAUSTROPHOBIC. DO YOU HAVE ANY ALTERNATIVES TO THE MRI SCAN?

Yes we do. We offer an Upright MRI and an Open MRI

WILL I GET A COPY OF MY TEST RESULTS?

Yes, you will get a copy of your results as well as a CD of the MRI scan on request

HOW QUICKLY CAN I BE SEEN?

We endeavour to see you on the same day, if possible.

CAN YOU ARRANGE TESTS?

All tests can be arranged prior to your consultation with us and ever after the consultation.

WHAT DOES THE CONSULTATION ENTAIL?

The consultation will begin with an assessment, followed by a diagnosis. Once you have received your diagnosis, you will be given a management plan and will be prescribed with medication. You will also receive a full consultation report.

IF I AM SEEN PRIVATELY, WILL I BE TAKEN OFF THE NHS WAITING LIST?

No. Seeing a doctor at Dementech will not affect your care through the NHS.

DO YOU OFFER VIDEO CALLS?

Dementech Neurosciences is now offering tele consultations to patients who are unable to physically attend our clinic on Wimpole street. We will be conducting these calls through Skype, FaceTime and WhatsApp call/Video call.

DO YOU PROVIDE FINANCE?

At this current time we do not offer finance. Payments will need to be made prior to tests and consultations.

HOW QUICKLY CAN WE GET AN MRI, BLOOD TEST AND OTHER TESTING DONE?

You can get the tests within 2 days of requesting it.

Test results will be received within 2 days.

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